Monday, March 17, 2008

I Don't Appear to Be Having a Relapse

In my last entry I told you that I was getting tired and short of breath without much cause, and that I was waiting for my monthly lab results to see if I was having a relapse.  This past Tuesday (March 11) I had my monthly lab tests done.  The results were normal for me.  I was relieved to hear this since I had been close to holding my breath for three weeks over my unusual symptoms.  As far as Krissy and I could tell, there was nothing in my blood counts to indicate that there was anything wrong with my marrow, and my blood chemistry showed that my kidneys are chugging along at about 40% of normal function like they have been for months.  *Whew*
 
Whenever I have labs done, I wait a few hours and then call my local oncologist's (cancer doctor's) office.  A nurse there gives me any lab results that I want over the phone.  After all this time they know me well and don't mind doing this for me.  I like getting the results on the same day the tests are done.  Naturally, Krissy and I can't interpret the results as well as a doctor can, but after spending almost a year at Hershey Medical Center, we can draw general conclusions from my labs. 
 
Since the lab results didn't show anything obviously wrong, on Wednesday I called my transplant nurse at Hershey and asked her what they thought down there.  She said she had told my transplant oncologist about my symptoms.  He said that he saw no problems in my lab results, and that my symptoms could be caused by something as simple as a mild viral infection.  My transplant nurse told me to relax, that she would call me if anything important turned up.  She hadn't called as of Friday, and after a sleepy weekend I decided not to wait any longer to write this entry. 
 
I plan to call two other doctors this week about possible causes for my symptoms.  If these two doctors can suggest anything significant, I'll let you know.  But the good news is that I don't appear to be having a relapse. 

Monday, March 10, 2008

Could I be having a relapse?

 
Lately when I work for 1/2 hour to 45 minutes I get tired and out of breath.  I'm not doing hard labor.  I'm just doing housework or grocery shopping.  It makes me wonder if I'm having some kind of relapse.
 
I don't know if it's something as simple as my hemoglobin being low again (that would explain why I get tired and out of breath).  Or perhaps it could be more serious like my MDS coming out of remission. 
 
I'm wondering if the coffee I'm drinking is damaging my donor marrow.  I have not heard that caffeine causes damage, but I'm just wondering.  I've had to drink a lot of coffee lately just to stay awake. 
 
Perhaps I could be having kidney problems and not MDS.  I've been eating too many foods with too much sodium lately. 
 
Other times I wonder if it's the Hemalytic Anemia coming back.  I don't ever want to have that again.  There was a time when I had to have seven bags of blood a day just to stay alive. 
 
What makes this more difficult is that I'm only getting blood tests done once a month now instead of once a week.  I don't know from one week to the next how well I'm doing.  I could have some kind of serious problem and know nothing about it.
 
Tomorrow (Tuesday) I'll have my monthly lab tests done.  Maybe they'll tell me something I need to know about my condition.  Perhaps there's something wrong.  The tests could just as easily show that nothing's wrong.
 
I won't be able to relax until I know what my results are.  Worrying like this isn't normal for me.  I'm used to seeing the results every week.  This helped me feel more secure in knowing how I was doing each week.  Not knowing at all is a lot worse than knowing that something is definitely wrong. 
 
If the test results don't tell me anything conclusive I'll call my transplant nurse in Hershey, and maybe she can give me some idea of what's happening.  As soon as I know what it is going on I'll be sure to let you know. 

My Cool Things -- Battling Tops and Jonny Quest

Here are more of "My Cool Things."  This entry is the last in this series. 
 

   Take away a nine year old boy's action toys and you'll have a sulking child.  At this age, my favorite store-bought action game was called "Battling Tops," which may not be familiar to you.  This was 37 years ago, after all.  Could they possibly still make this game?  In case they don't, I'll give you a quick description of it.  The game had a round, concave, arena-like playing area with four player stations at equal distances around the perimeter.  The playing pieces were four plastic tops, several inches high.  Each player got one top and a small plastic ring with a length of thread attached to it.  The ring fit over the player's index finger and the thread wrapped tightly around a top quite a few times.  The top was then placed in the player's station, which was designed to hold the top steady until the game began.  All players pulled their rings at the same time, causing the tops to spin furiously in the concave playing area.  From this point on, all the players could do was watch and hope.  The tops would whack repeatedly into each other, making a surprising amount of noise, until all the tops except one either fell over or were flung out of the arena, often at impressive speeds.  The winner was the player who had the last top still spinning.  
 
I don't think I played this game with the neighborhood boys because they seemed to enjoy breaking store-bought toys as much as playing with them.  I wanted "Battling Tops" to last for a while, so I only played it with my Dad.  I'm not sure if he enjoyed playing the game or if he was just playing for my sake, but either way I had a ball.  The best parts were listening to the whirring, rattling, whacking noises the tops made, and dodging the tops as they flew across the room.  If you're thinking that this sounds like the perfect non-electronic game for a boy, I'd have to agree with you.  Action games that thrill young boys without taking away their innocence are impressively cool. 
 
 
   When I was 10 years old, my favorite cartoon was an action-packed thriller called Jonny Quest.  Unlike any other cartoon, the considerable violence on this program was realistic:  not graphic, but definitely far more believable than Bugs Bunny/Road Runner  pseudo-violence.  Bad guys usually met with swift and imaginative deaths.  I wasn't interested in seeing anyone die, but I loved the high level of action.  I also loved the realistic detail of the animation. 
 
Jonny Quest  was different from other Saturday morning cartoons because it had originally aired as a prime time science fiction/adventure series in the 1964-65 season.  Probably because it was a cartoon, the show got away with levels of action that never would have been permitted on other 1960s prime time programs.   Jonny Quest  was quite popular, but was canceled after one season because every episode went over budget.  The program was just too expensive for a television series of its era. 
 
The show followed the adventures of Dr. Benton Quest, who was billed as one of the top three scientists on Earth.  He apparently had a PhD in everything, and he traveled the world thwarting the plans of evil scientists and other high-tech villains.  With him he brought Jonny, his 10 or 11 year old son, and Hadji, Dr. Quest's 11 year old adopted Indian son.  Roger "Race" Bannon was the pilot of Dr. Quest's super-high-tech private jet; "Race" was also the boys' tutor and much-needed bodyguard.  Rounding out the regular cast was Bandit, Jonny's white bulldog. 
 
After being canceled, Jonny Quest  went into very successful syndication until parents' groups against cartoon violence had the program pulled from broadcast in 1972.  The program returned years later, when the level of television violence caught up with the precedent set by this cartoon series.  In the '80s, and again in the '90s, two new Jonny Quest  series were produced for a short time, but I felt they were inferior to the original. 
 
I haven't seen an original Jonny Quest  episode since the early '80s, and if I found one now I probably wouldn't watch it.  Don't get me wrong -- I'm not a pacifist.  I enjoyed the Star Wars  and Indiana Jones  movies.  But if I had young children I'm sure I'd be concerned about them watching something as violent as Jonny Quest. When I was 10 years old, though, I thought Jonny Quest  was awesomely cool. 

Sunday, March 9, 2008

My Cool Things -- Aircraft and Dinosaurs

Here are more of "My Cool Things."  I'll finish this series in the next entry.
 

    When I was seven years old, my family moved to a suburb of Chicago.  Our new home was modest, pleasant, and agreeable in every way, except that it was located under a high-traffic, low-altitude approach path to O'Hare Airport. At first we didn't like the constant noise from the jet engines, but surprisingly, we adjusted to it quickly.  Somehow we learned to tune out most of the constant roaring.
 
Before long I discovered that sitting in our backyard and watching the endless parade of airliners was an entertaining pastime.  I had never flown on a plane, so I found myself wondering how being a passenger on one of those jets would feel.  My daydreams quickly grew into imagining the experience of piloting a plane.  I saw myself sitting in the cockpit, my hands on the controls, maneuvering the powerful aircraft with practiced ease.  My parents had been airline passengers; they spoke about the force of taking off pushing them firmly back in their seats, and the exhilaration of climbing rapidly to a great height.  In my mind I guided planes through many imaginary flights like my parents described, and still more breathtaking flights which I created in my dreams.  I decided that I would be a pilot when I grew up. 
 
Through junior high and high school I considered several different careers, but becoming a pilot was always close to my heart.  Then one day after I had graduated from high school, my dream was abruptly shattered.  I spoke with a professional pilot who told me that to be a pilot you had to stand at least 5 feet 10 inches tall.  I had stopped growing at 5 feet 7 inches in height.  There was no escaping the cold facts.  I would never pilot jet airplanes.  Eventually I recovered from my disappointment and moved on to other dreams.  But even today I know that piloting aircraft would be adventurously cool.
 
 
 
    Like many eight-year-old boys, I loved dinosaurs.  I didn't have any dinosaurtoys or action figures, which my parents probably would have bought for me if it had ever occurred to me to ask for any.  Instead, I spent hours memorizing every available fact and theory about these ancient reptiles.  My information was provided by many oversized, heavily illustrated books produced for my age group, which my Dad did buy for me. 
 
When I couldn't corner anyone long enough to share my enthusiasm for the Mesozoic era and its inhabitants, my interest turned to more creative applications of my hobby.  I'd lightly sketch a member of each dinosaur species on construction paper, carefully cut out each image, and fill in the details of an artist's conception of that dinosaur using a 64 piece set of Crayola crayons.  My room would become a child's recreation of the Mesozoic world as I placed each dinosaur in its native construction-paper-and-crayon habitat.  One corner of my room became an ocean or inland sea where marine dinosaurs hunted prehistoric fish.  Nearby was a swamp where Brontosaurus and other giant sauropods waded while eating soft water plants.  A drier landscape could be found by my closet, where Tyrannosaurus Rex and three-horned Triceratops battled, surrounded by a menagerie of other familiar and obscure species.  Flying dinosaurs perched in tall, prehistoric trees. 
 
Transforming my bedroom into a world of dinosaurs took much time and effort, but the enjoyment it brought me was well worth the work.  I would make the various dinosaurs carry out what I imagined were normal activities for them.  They would interact and go on reptilian adventures until their construction paper forms wore out.  Then I'd continue reading my dinosaur books and searching for another patient listener who I could privilege with the wonders of ancient Earth.  Long before the era of video games and DVDs, being a boy who was passionate about dinosaurs was imaginatively cool.
 
This is the fourth entry of a five part series.

Wednesday, February 27, 2008

My Cool Things -- Apollo 11, The Starship Enterprise, and Star Trek

Here are three more of "My Cool Things."  I'll finish the last of "My Cool Things" in the next two entries. 

 The Apollo 11 mission gripped the world as one of the most compelling nine days in history.  The mission boasted the first manned Moon landing on July 20, 1969.  That day at 10:56 PM EDT, when Neil Armstrong became the first human to stand on the Moon's surface, my eyes were glued to our television screen.  I was seven years old, but my parents let me stay up late to watch an event which would fascinate me for the rest of my life.  Despite being absorbed in the NASA images of Moon rocks and dust being collected for analysis on Earth, I felt sad for astronaut Michael Collins.  He had to remain orbiting the Moon while Neil Armstrong and Buzz Aldrin explored the lunar surface and got all the glory. 

Scientifically accurate details from the Moon's surface captivated me.  The astronauts appeared to bounce across the surface in one-sixth of Earth's gravity.  Lunar dust which was kicked up fell directly back to the surface, leaving no floating cloud in the moon's airlessness.  And when the astronauts left the Moon, the previously motionless American flag, which had been planted at the landing site, whipped as in a furious wind.  This effect was caused by powerful rocket exhaust as the Lunar Module rose from the lunar surface.  The astronauts' return to Earth on July 24 left me with a profound sense of wonder that the mission had been a complete success.  Knowing that humans have walked on another world is astronomically cool.  

 Star Trek's famous Starship Enterprise  first voyaged to distant,   imaginary worlds on September 8, 1966, nearly three years before Apollo 11.  Science fiction can leap beyond factual science where rockets are the most advanced propulsion system available.  The Enterprise  journeyed between stars at incredible speeds by using warp engines, which physicists rightly reject as pure fantasy.  But that doesn't stop millions of us from thoroughly enjoying the many fictional tales from the Star Trek  universe.  Obviously, none of the five Star Trek  television series or 10 big screen movies ever tried to explain warp drive, but we have been given some tantalizing details. 
 
The original Starship Enterprise  could have traveled the 25 trillion miles from our Solar System to the next nearest star system, Alpha Centauri, in three days.  By comparison, the Apollo missions took three days to reach the Moon, which is only 238 thousand miles away.  The second Star Trek  series, The Next Generation, introduced us to a new Starship Enterprise  which could have traveled from Earth to Alpha Centauri in just 38 minutes!  This ship was no slouch.  To actually travel at such speeds, a staggering revolution in physics and engineering would be necessary.  The Next Generation  is supposed to take place in the 24th Century.  I don't believe that humanity would have a snowflake's chance in Hades of advancing that far in just 350 years, even assuming that these advancements were scientifically possible.  But Star Trek  isn't about being realistic; it's about traveling to exotic places and having amazing adventures.  Having such adventures by means of the Starship Enterprise  is stellarly cool.
 
 
  In high school, the original Star Trek  series fascinated me.  Let me speak from experience:  This television program never would have worked without futuristic technology and adventure, but another aspect of the show kept me focused intently on the series.  Like many viewers, I watched Star Trek  to follow the relationships and experiences of its cast of characters.  In some ways I saw a reflection of myself and others in the members of this starship crew.  For example, I admired Captain Kirk's courage and self-confidence.  I wished that I could be like him in these ways, but his quickness to use force and his smooth success with women made it difficult for me to relate to him.  I was a painfully shy teenager who was socially awkward and was virtually an outcast among my fellow students.  No, Kirk was not a reflection of me.  He reminded me more of the popular, athletic boys at school.  Then there was Dr. McCoy; he genuinely cared about people, but he was prone to being irritable. Also, he was suspicious of science and technology even though he was a physician and a scientist himself.  No, McCoy also was not a reflection of me.  I did care about people, but I didn't want to be socially abrasive like McCoy.  And again unlike him, I saw science as a great hope for the future of humanity.  McCoy reminded me of some adults I had met or heard of. 
 
Mr. Spock was the one character that I could identify with.  He wasn't shy, but he was an outcast in profound ways.  Spock was half Vulcan and half human.  On Earth he was considered Vulcan, and on Vulcan he was considered too human.  Anywhere else he went he was a complete outsider.  Like me, he didn't fit in well anywhere, except to some degree with his shipmates, a few of whom were his friends.  I envied him for having those friends.  Also, his Vulcan philosophy of logic and emotionlessness made him very different from everyone else on the Enterprise.  He was not allowed to express feelings, or even admit that he had them, which made it difficult for him to interact with the Enterprise  crew, even with his friends.  I was alone in a crowd, too, although for different reasons.  Spock became a role model for me; I saw his great inner strength which carried him through his difficult life, and I wanted to be as strong as he was.  I tried very hard to remain unaffected by the harrassment I received from the other kids for being different than they were.  In some ways I brought Spock's determination with me in my daily life, and I gained strength from his strength.  I don't know if I would have survived my high school shyness and depression without having Star Trek, and especially Spock, to turn to for help.  To me, Star Trek  became almost a philosophy for being a teenager.  Having a philosophy and a role model for surviving a painful period of your life is logically cool.
 
This is the third entry of a five part series.
 

Friday, February 1, 2008

My Cool Things -- Krissy, Jethro Tull, and Baroque Music

Here are some more of "My Cool Things."


  What challenges me is to capture in words the unique beauty that my wife brings to my world.  My words won't adequiately describe her, but I'll try anyway.  Krissy loves me; when she first confessed her deep feelings nine years ago, the revelation stunned me.  No other woman had ever loved me, and I had lost hope that any woman ever would.  That her commitment to our relationship hasn't wavered for almost a decade is still a source of wonder to me.  What she sees in me that other women dismissed as insignificant baffles my mind.  But whatever she sees has been compelling enough to keep her with me through two cancers and a bone marrow transplant.  And my first cancer was diagnosed just four months after we met!  That and her willingness to marry me is amazing.  I haven't even mentioned her intelligence, her sense of humor, our mutual interests and values, her imagination and playfulness, her patience, and a long list of other qualities that she has.  I could write volumes about what has made our relationship precious and still not cover all the details of why I  love her.  My wife Krissy is completely cool.


 I've heard Jethro Tull called the original Alternative Rock band.  Musically and lyrically, they are superior to, and far more artistic than, most popular musicians; frequent use of diverse instruments lends their tracks a unique but pleasing sound.  Jethro Tull writes largely about the profound social and political issues of our time.  A fondness for descriptive detail breathes life into their viewpoints, which are thought-provoking and persuasive.  I've enjoyed many of their albums, with the exception of Aqualung, which has a strong atheistic theme.  It saddens me to know that they reject religion, but you don't have to agree with everything artists believe to benefit from their work.  Jethro Tull's tracks are thoroughly enjoyable; artists who both inform and entertain are doubly cool.

 Are you familiar with baroque music?  If all of you were, my job in this paragraph would be unnecessary.  I have to assume, though, that some of you are drawing a blank.  Baroque was a period in European music between 1600 and 1750, marked by an elaborate and ornamental style, which preceded the Classical music era.  Now before your eyes glaze over, let me assure you that this won't become a lecture in music history.  Elaborate and ornamental -- what does that mean, right?  Trying to understand any kind of music by a textbook definition without actually hearing some of it performed is an almost hopeless task.  What I would like to do, if you've never heard baroque played, is urge you to give it a chance.  Maybe you've heard classical music and didn't like it.  You still might find that you like baroque.  Let me give you a popular example to listen to and let you judge for yourself:  Vivaldi's Spring Concerto   If you liked this, I hope you seek out more baroque.  If you didn't, that's all right too.  Liking baroque music or disliking it are both naturally cool.

This is the second entry of a five part series. 

 

Sunday, January 27, 2008

My Cool Things -- My Transplant, Aussie Hat, and God

In the sidebar of this journal I will be adding several pictures from time to time.  I have chosen things that I think are cool.  I'm calling them "My Cool Things."  I've decided to tell you about them in a few entries. 

 

 

Today is a Red Letter Day on my calendar.  This is the second anniversary of the bone marrow transplant that put one, and kept another, of my cancers in remission.  In the last two years I have been through many complications, numerous procedures, countless infections, and endless tests; I almost died a number of times.  But without that transplant I would almost certainly be dead.  Being alive against the odds is definitely cool.
 
 
 
Australian hats have a unique style that brings to mind the Outback, exotic animals, and adventure.  My wife wanted to buy me a wide-brimmed hat to keep the sun off my face and neck since bone marrow transplant recipients are at high risk for skin cancer.  I picked an Aussie hat that was distinctive and good looking.  We chose a hat over sunscreen because shade is more effective than chemicals, and a fine hat can improve your appearance.  A little help from Australia is welcome, because avoiding a third cancer can only be cool.
 
 
God has been my friend since before I was born, even during those years when I spent my time in rebellious pursuits.  He was with me during my treatment for cancer, especially during my many, sometimes life-threatening, complications to my bone marrow transplant.  God kept me alive through those difficult times because He has a plan for my life.  Doctors, medications, and transplants are several ways God heals us of our illnesses.  Supernatural miracles may be the exception rather than the rule; He can  heal us that way, but He often chooses to help us help each other.  This does not diminish God's role in the treatments that lead to our cures.  I am deeplygrateful to God and my doctors for my recovery.  Having a friend like God is eternally cool.
 
This is the first entry in a five part series of "My Cool Things."