Monday, March 10, 2008

Could I be having a relapse?

Lately when I work for 1/2 hour to 45 minutes I get tired and out of breath.  I'm not doing hard labor.  I'm just doing housework or grocery shopping.  It makes me wonder if I'm having some kind of relapse.
I don't know if it's something as simple as my hemoglobin being low again (that would explain why I get tired and out of breath).  Or perhaps it could be more serious like my MDS coming out of remission. 
I'm wondering if the coffee I'm drinking is damaging my donor marrow.  I have not heard that caffeine causes damage, but I'm just wondering.  I've had to drink a lot of coffee lately just to stay awake. 
Perhaps I could be having kidney problems and not MDS.  I've been eating too many foods with too much sodium lately. 
Other times I wonder if it's the Hemalytic Anemia coming back.  I don't ever want to have that again.  There was a time when I had to have seven bags of blood a day just to stay alive. 
What makes this more difficult is that I'm only getting blood tests done once a month now instead of once a week.  I don't know from one week to the next how well I'm doing.  I could have some kind of serious problem and know nothing about it.
Tomorrow (Tuesday) I'll have my monthly lab tests done.  Maybe they'll tell me something I need to know about my condition.  Perhaps there's something wrong.  The tests could just as easily show that nothing's wrong.
I won't be able to relax until I know what my results are.  Worrying like this isn't normal for me.  I'm used to seeing the results every week.  This helped me feel more secure in knowing how I was doing each week.  Not knowing at all is a lot worse than knowing that something is definitely wrong. 
If the test results don't tell me anything conclusive I'll call my transplant nurse in Hershey, and maybe she can give me some idea of what's happening.  As soon as I know what it is going on I'll be sure to let you know. 


  1. ((((((((((((((HUGSTOYOU))))))))I hope and pray you will be ok.

  2. Keeping you in my prayers John.

  3. good luck John, hope its nothing serious, maybe you just need slow down a little, sending you this with love & a hug x

  4. I am praying there is a simple answer with a simple fix for whatever is going on.
    loving you

  5. You have been so sick for so long, I bet it's just your body is out of shape.  You were on a "high" doing so much this last time cause you felt so good.  Your body is just tired!  I will keep you in my prayers.

  6. I'm glad your test are tomorrow.  It's good to be checked out.  Praying for a simple, easily corrected reason.  -  Barbara

  7. John; glad the tests are being done tomorrow; hoping everything comes out all right with them; maybe you can ask your doctors if you can have biweekly checks instead of monthly to put your mind at ease and cause less worry on your part


  8. At least you won't need to wait for a whole month, John. You'll know soon. Hope it's nothing serious.


  9. praying for you John


  10. As always, your in my prayers.

  11. Oh John, you  are in my prayers.  Could you just have a virus, perhaps?  Something simple maybe?  You are in my prayers.  Worry can make fatigue much worse.  I LOVE YOU!!!  Prayers and lots of love, Val xox

  12. John you'll be in my thoughts and prayers that your lab tests you had done were good for you dear. Hang in there, keep positive.  Arlene (AJ)