Saturday, August 9, 2008

My cancer is not back

 
I haven't been able to write an entry for awhile, but I wanted you to know that my oncology appointment on July 28th went well. 
 
My cancer is not back.  When my oncologist returned from vacation he told me that the doctors who thought my cancer was back didn't have his experience in treating MDS.  That's why they were mistaken. 
 
He's quite pleased with my progress both with the transplant and with my kidneys.  The reason my kidneys were not functioning as well as they had been was because of a medication I was taking.  My oncologist is taking me off this medication gradually, and my kidneys have already begun to improve.  I will be off this medication in about a week.  
 
The only thing my oncologist is concerned about is my iron level.  I have iron overload from the more than 100 blood transfusions I've had since my bone marrow transplant.  My iron level is more than 7 times the normal level what it should be.  In the near future, my oncologist is hoping to put me on a medication which will lower my iron level back to normal. 
 
I want to thank every one for their concern, comments and prayers.  Your support really means a lot to me.  You made it easier to get through this.  I'll do my best to keep you up to date on my future progress.    

20 comments:

  1. I'm so happy to hear your good  news and will keep you and Krissy in my prayers.  'On Ya' - ma

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  2. It is such wonderful news John.  The power of prayer is awesome and you have had so very many praying for you.  I hope they get your medication sorted out regarding your iron levels.  I am nervous as I have a bp check and diabetic check coming up next week. Please say some prayers for me.

    http://journals.aol.co.uk/jeanno43/JeannettesJottings/

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  3. YEAH! YEAH! YEAH! what wonderful news to wake up to this morning :)
    ~Cathy

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  4. Good news indeed !   God is so good !!  Linda in Washington state

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  5. praising and thanking the Lord that your cancer is not back John!! that is wonderful fantastic news!!

    keeping you and Krissy in my prayers

    betty

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  6. Rejoicing with you and Krissy at the wonderful news that your cancer is not back and your kidneys are improving!  I'll be praying the iron levels can be lowered.
    loving you
    karyl

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  7. GREAT news! Enjoy your weekend.
    Pam

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  8. Hi John =)!  Congrats on making Ed's pick list!  You very much deserve it!  I love you and Krissy!  ~waving from the town next to you~ xoxoxoxoxoxoxox
    http://journals.aol.com/valphish/ThereisaSeason
    http://journals.aol.com/valphish/JoyInTheRain

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  9. This is wonderful news, John!  The Lord has been so good to you and Krissy in this.  I will continue to pray for you.  Love and blessings, Penny  http://journals.aol.com/firestormkids04/FromHeretoThere

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  10. That is such good news! I am so happy for you!
    Laura

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  11. Glad to hear the good news.

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  12. Wonderful news!!!
    Have a blessed Sunday!
    Linda :)

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  13. Praise God!!  Doing a happy dance for you.
    Missie

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  14. Brings a whole new meaning to "iron poor blood" doesn't it.  So thankful there is no sign of the cancer!  And glad you are back in the hands of the doctor that knows you and your case so well.  -  Barbara
    Barbara

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  15. Just stopping by....wanting to ask a few questions.
    Do you eat?:
    Red meat
    Leafy greens
    Multi-Vitamins

    If so, have you ever considered knocking those out of your diet to see if the iron levels go down?
    Have you ever been diagnosed with fatty liver?

    One must wonder too if the bone marrow transplant donor had an iron issue....

    Regardless, I do hope that the doctors figure this out. Good to hear your doing well with the kidney transplant.....and there is nothing wrong about being too stubborn.....hard-headedness can be positive ya know! ;o)

    Steph

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  16. Wonderful news!!!
    Sharon

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  17. Praise G-d! Mark and I will pray for your iron levels.
    Laini

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  18. very happy to hear the cancer is not back. ((((((hugs)))))))
    Love,
    Cindy

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  19. Praise God.       Dawn

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  20.     Sorry for being so late to comment, but this is very good news. All the best to you, and please keep this up.
    Jude
    http://journals.aol.com/jmorancoyle/MyWay

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